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Be Heard via the RPF’s Rheumatoid Arthritis Patient Survey
Rheumatoid Patient Foundation brings you its 1st Rheumatoid Arthritis Patient Survey The Rheumatoid Patient Foundation (RPF) exists to serve people with RA. Although there have been numerous...
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An Introduction to the Genetics of Rheumatoid Arthritis (RA)
RA Genetics 101: Glass half-full or half-empty? Part 1 Please welcome Professor Robert W. West, Jr, PhD as a guest on the subject of Rheumatoid Arthritis and genetics. Professor West uses his expertise...
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Excellent Rheumatology Care with a Horrible Rheumatoid Disease
RA Warrior is glad to welcome David Biundo to share some male perspective of living with Rheumatoid Arthritis. Over the last few months David’s rheumatologist has read and re-read his nuclear bone scan...
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Evidenced-based Medicine or Easy-bake Oven: Tension Between Evidence and Reality
This post was inspired by the article Patient Advocates: Flies in the Ointment of Evidenced Based Care by Jessie Gruman at Health Affairs Blog. Patient advocacy and evidenced-based medicine are both...
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Do Doctors Need to Love Patients?
The most admired leaders of our country have been the ones who trusted us, valued us, and actually loved us. President Reagan called America a “shining city upon a hill,” a biblical reference to the...
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Response to An Identity Crisis for RA by Dr. R. Franklin Adams
Recently, I read an article in The Rheumatologist (preceding a new PR campaign by the American College of Rheumatology), “An Identity Crisis for RA: A few suggestions to bring rheumatic disease the...
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The Path of Mercy in Medicine: A Tale of Two Doctors
Physicians enjoy a unique position in our society with unique opportunities to make a difference in others’ lives. With that powerful role, they can choose between a path of mercy and a path of...
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Rheumatoid Patient Foundation Needs Your Help
I was glad when it started raining today – it’s proper to rain when you cry. The Digital Patients’ Bill of Rights Things are happening fast. The E-Patient Connections conference was fantastic. The...
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Behind the Scenes Video: Patient at a Social Media Conference
Telling it like it is. On camera. It’s uncomfortable. It’s very hard to talk about harsh pain. Why does pain seem so embarrassing? I even gave birth in quiet agony a few times because of that. 3...
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Video Blog: Two Essentials with a Rheumatoid Arthritis Diagnosis
What do you say to someone diagnosed with Rheumatoid Arthritis? If I could meet to every person diagnosed with Rheumatoid Arthritis, I’d encourage them to Expect the best from treatments; Read all of...
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When Rheumatology Is Sexy
If medicine can be sexy the way a new car or an iPhone is, what about rheumatology? Is there anything desirable or exciting there? Possibly, according to rheumatologist Ronan Kavanagh who wrote “The...
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Video: Rheumatoid Patient Foundation Gives RA Patients a Voice
This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The...
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Mayo Clinic Video Interview: Patients at ACR Scientific Meeting
Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like...
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Update from Chicago!
It’s our last day in Chicago! Katie Beth and I are going to be tourists for a half-day and then pack for an early flight. All day tomorrow we’ll be in transit. Here’s a quick update until I’m able to...
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Kelly Young Wins WebMD Health Hero Award
WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the...
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Rheumatoid Arthritis Awareness Is about Medical Care, Not Sympathy
My Bear had an appointment to see his terrific pediatrician today again about his swollen finger joints. She was home with a cold, but we waited an hour to see an alternate. The fellow didn’t seem to...
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You’re Cordially Invited to Make SWEET MEMORIES with Other Warriors &...
Our friends at Arthritis Introspective (AI) do so much practical work to help people living with diseases like RA (and adult JRA) to connect for in-person support. Many of the groups listed on our own...
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The Immune Fingerprint and Rheumatoid Disease
I’ve made up another term because I haven’t heard of anything suitable: “immune fingerprint.” It occurred to me that while we talk about how the disease Rheumatoid Arthritis (or Rheumatoid Autoimmune...
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What’s the Big Deal about Rheumatoid Disease?
Just how big of a deal is this disease? I suppose the fact that I’ve written several hundred pages about it is a clue to my opinion. Yet, most of those articles were written with intentional restraint,...
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I’m Not All Better, Just Too Polite to Whine; Yet Victory Is Still Sweet
Please don’t miss the news at the end of the post! I had to put A LOT on one page since it’s been a few days! My endocrinologist was so excited about my attending the ACR in November and winning the...
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